Ports
Vascular Catheters
This compares the pros and cons of ports, central lines and no in-dwelling catheter.
Review 7/08
Sammie's Tops
A grandmother designed tops to hold the dangling tubes of her granddaughters Hickman catheter. The tops come in white, ladybug and Packer (football) cloth.
Review 8/08
Controlling Procedural Pain
Controlling Pain During Procedures
Pharmacologic options for pain relieve during procedure and other links.
Review 7/08
Drugs and Getting Kids to take Pills
Getting Kids to take Pills
This page posts many ways that other parents (submitted from listserves) to get their kids to get the medicine down.
Review 7/08
E-video and Primer on Taking Pills
On this page that was initially designed for pediatric AIDS patients to get them to swallow pills. A primer for pill swallowing and a videoclips which can be viewed on the web. This uses a behavioral modification technique.
Review 7/08
Neupogen
A site from the manufacturer (Amgen) about neupogen. There is a specific area for patients.
Review 6/06
Prophalactic Antibiotics (Bactrim/Septra and alternatives)
This site explains the reasoning for routine antibiotic use to prevent PCP pneumonia.
Review 7/08
Medication Assistance
Needy Meds
An information source in trying to help obtain medications.
Review 7/08
Radiation
Starbright Hospital Pals
B, the purple dinosaur, explains radiation therapy to young children and their parents. With education, communication and distraction perhaps fewer children will need general anesthesia to have radiation treatments. Available free to any hospital that treats children with radiation.
Review 7/08
Oncolinks- radiation
Five pages which talk about radiation- the procedure and the side effects ( look under treatment).
Review 7/08
Gamma Knife
International Radiosurgery Support Association
A large site with information, patient stories, FAQ's and center locations.
Review 7/08
John Hopkins Radiosurgery Site
Information on gammaknife, proton beam and linear accelerator radiation- discussion board and email available from site.
Review 7/08
Gamma Knife Radiosurgery
A site out of Florida that discusses the procedure, indications and sample cases.
Review 7/08
Elekta Instruments, Inc
A commercial site by the manufacturer- has some good information and pictures.
Review 7/08
Proton Beam Radiation
Proton Beam Radiosurgery
This site explains this type of therapy which has been used on the very young because of the little spread of radiation to normal tissue.
Review 7/08
Loma Linda University Medical Center
Nation's first hospital-based proton treatment center for cancer, Loma Linda University Medical Center offers proton therapy for prostate, lung and brain cancers.
Review 7/08
Teeth and Mouth Care
Teeth and Mouth Care (includes late effects)
This page was written by a dentist/cancer kid's dad. Great site-great references. Recommended
Review 7/08
Fertility
Fertile Hope
A comprehensive fertility preservation resource for cancer patients whose medical treatments present the risk of infertility- some information regarding kids.
Review 7/08
Nasogastric Tube Feedings
Home Care- Feeding Tube
This site talks about a variety of feeding tube options.
Review 7/08
Hearing
Sources for Funding Hearing Aids and Cochlear Implants
Appears to be perhaps the most exhaustive list of funding potentials for hearing aids on the web. A long page that is somewhat cumbersome but looks useful.
Review 7/08
Diet/Nutrition
Scandishakes
Powdered shakes in chocolate, vanilla, and strawberry that is 600 calories when added to 8 ounces of whole milk.
Review 7/08
Nutrition for Children with Cancer
An American Cancer Society webpage with several articles relating to nutrition including the effects of steroids, recipes, suggestions, and food handling tips with low WBCs.
Review 7/08
Neurologic and Neurosurgical Issues
Hydrocephalus and Shunts
Your Surgery.Com
This site now charges for use- 5 dollars for one veiwing. Previously viewed in 11/01 but not seen since it became a money site. It was a good site with animation of surgery and audio.
Review 7/08
Hydrocephalus
An article written at a high medical level on all types of hydrocephalus
Review 7/08
Hydrocephalus Center
Various books, articles and links that may be of interest to the hydrocephalus patient.
Review 7/08
Hydrocephalus (HYCEPH_L)
This is the home page of the listserve which gives instructions on posting and subscribing. This list is open to all people interested in hydrocephalus and frequently goes off-topic.
Review 7/08
Hydroparents
A listserve of approximately 175 people interested in hydrocephalus.
Review 7/08
Pharmaceuticals
Drug3k
Online Drug Encyclopedia website. Drug3k- Prescription drug information for consumers. Drug3k- Prescription Drug3k is a
project of European Organisation of Family Health
Research (EOFHR) - a non-profit research and
education organization .(http://www.eofhr.org/technology.php )
Review 7/08 http://www.drug3k.com/
