Information on Specific Tumors
*****Start your search with the NCI/PDI Information******
NCI/PDI Information on Oncolinks
I found this the easiest way to get to NCI/PDQ information on all pedi brain tumors. You can get to it by going through oncolinks main page and choosing types of cancer- then pediatric cancers. Also in Spanish.
Review 6/06
St. Judes Site on Brain Tumors
Information on tumor types and work going on at St. Judes.
Review 6/06
Jim Kenzigs Memorial Brain Tumor Links- on Virtualtrials
A site maintained by a dad you lost his daughter- the most complete list of brain tumor web resources- 398 at time of review. Easily searchable
Review 6/06
Acoustic Neuromas
Acoustic Neuroma Association
Review 6/06
Atypical Teratoid Rhabdoid Tumors
Rhabdoid Kids Home Page
A grandfather designed site with many links and a discussion board- best place to start.
Review 6/06
Rhabdoid Brain Tumor Website
A parent designed website with an unofficial registry and links.
Review 6/06
Rhaboid Resources File
An article put together by a parent and reviewed by medical professionals on this type of tumor.
Review 6/06
Workshop on Childhood Atypical Teratoid Rhadoid Tumors of the CNS
This is a listing of the agenda and participants of a workshop held in January 2001 by the National Cancer Institute and the Office of Rare Disease.
Review 4.7.03
Brain Stem Gliomas
Brain Stem Gliomas in Children
Article written at a moderately level of medical terminology which goes over symptoms, diagnosis, treatment, clinical trials, classifications and prognosis.
Review 6/06
Childhood Brain Stem Gliomas (PDQ)
A patient document from the National Cancer Institute giving information on this type of tumor. Health care professional version also available.
Review 6/06
Brain Stem Gliomas
Information and personal reflections by Jim Kenzig who lost his daughter to a brain stem glioma.
Review 6/06
Advice to Parents of Children with Brain Stem Tumors
A parent run website in memory of their child who died of a brain stem glioma. On the home page there is a left side button regarding information to parents. Very practical advice.
Review 6/06
Brain Stem Gliomas
A site written at a high medical terminology level. CT scans and references are included.
Review 6/06
Brain Stem List
This list is open to persons interested in childhood or adult brain stem tumors. Archives are available to members.
Review 6/06
Brainstem-Glioma
This is a group over 100 persons interested in this tumor. Archives are private.
Review 6/06
Ependymomas
Ependymoma: Cancer BACUP Fact Sheet
Information intended for parents- United Kingdom site.
Review 6/06
Spinal Ependymomas
A site written at a high medical terminology level. MRI scans and references are included.
Review 6/06
The Current Management of Intracranial Ependymomas in Children
An Annals of Neurosurgery article witten in 2002 by doctors from Beth Israel Hospital. Very complete but written at extremely high medical level.
Review 6/06
Ependyparents
Email message to -- ependyparents-captain@braintrust.org
A small group intended just for parents of children with ependymomas- from The Brain Trust (www.braintrust.org)
Review 6/06
Medulloblastoma
Medulloblastoma
An article written by Roger Packer.
Review 6/06
Medulloblastoma List
A private list. One must write the list owner with an introduction before joining. Over 500 members belong to this list.
Review 6/06
Glioblastoma Multiforme
Young Adults Surviving Glioblastoma
A small site with some stories and contact information.
Review 6/06
Glioblastoma Multiforme
These two articles are written for medical professionals- references are included.
Review 6/06
Germinoma
Germinoma
This article is written at a high medical level.
Review 6/06
Optic Glioma
Optic Nerve Gliomas
This article, with a radiology bent, is written at a high medical level.
Review 6/06
Optic Glioma
There are about 90 people on this site about this tumor. Archives are private.
Review 6/06
Choroid Plexus Tumors
Choroid Plexus Papillomas
These two articles are written at a high medical level about this benign tumor.
Review 6/06
Choroid Papilloma and Carcinoma
This is a very small group interested in this rare tumor
Review 6/06
Astrocytoma
Astrocytoma/Glioma
This is a short page on this type of tumor.
Review 6/06
Astrocytoma
This article is written at a high medical level on this tumor.
Review 6/06
Posterior Fossa Tumor
Posterior Fossa Tumor
Although not really a specific tumor, this highly medical article may help with understanding tumors located in this area.
Review 6/06
