Information on Specific Tumors
*****Start your search with the NCI/PDI Information******
NCI/PDI Information on Oncolinks
I found this the easiest way to get to NCI/PDQ information on all pedi brain tumors. You can get to it by going through oncolinks main page and choosing types of cancer- then pediatric cancers. Also in Spanish.
Review 7/08
St. Judes Site on Brain Tumors
Information on tumor types and work going on at St. Judes.
Review 7/08
Jim Kenzigs Memorial Brain Tumor Links- on Virtualtrials
A site maintained by a dad you lost his daughter- the most complete list of brain tumor web resources- 398 at time of review. Easily searchable
Review 7/08
Acoustic Neuromas
Acoustic Neuroma Association
Review 7/08
Atypical Teratoid Rhabdoid Tumors
Rhabdoid Kids Home Page
A grandfather designed site with many links and a discussion board- best place to start.
Review 7/08
Rhaboid Resources File
An article put together by a parent and reviewed by medical professionals on this type of tumor.
Review 7/08
Workshop on Childhood Atypical Teratoid Rhadoid Tumors of the CNS
This is a listing of the agenda and participants of a workshop held in January 2001 by the National Cancer Institute and the Office of Rare Disease.
Review 4.7.03
Brain Stem Gliomas
Brain Stem Gliomas in Children
Article written at a moderately level of medical terminology which goes over symptoms, diagnosis, treatment, clinical trials, classifications and prognosis.
Review 7/08
Childhood Brain Stem Gliomas (PDQ)
A patient document from the National Cancer Institute giving information on this type of tumor. Health care professional version also available.
Review 7/08
Brain Stem Gliomas
Information and personal reflections by Jim Kenzig who lost his daughter to a brain stem glioma.
Review 7/08
Advice to Parents of Children with Brain Stem Tumors
A parent run website in memory of their child who died of a brain stem glioma. On the home page there is a left side button regarding information to parents. Very practical advice.
Review 7/08
Brain Stem Gliomas
A site written at a high medical terminology level. CT scans and references are included.
Review 7/08
Brain Stem List
This list (sponsored by the Cleveland Clinic) is open to persons interested in childhood or adult brain stem tumors. Archives are available to members.
Review 7/08
Brainstem-Glioma
This is a group over 100 persons interested in this tumor. Archives are private.
Review 7/08
Ependymomas
Ependymoma: Cancer BACUP Fact Sheet
Information intended for parents- United Kingdom site.
Review 7/08
Spinal Ependymomas
A site written at a high medical terminology level. MRI scans and references are included.
Review 7/08
Ependyparents
Email message to -- ependyparents-captain@braintrust.org
A small group intended just for parents of children with ependymomas- from The Brain Trust (www.braintrust.org)
Review 6/06
Medulloblastoma
Medulloblastoma
An article written by Roger Packer.
Review 7/08
Medulloblastoma List
A private list. One must write the list owner with an introduction before joining. Over 500 members belong to this list.
Review 7/08
Glioblastoma Multiforme
Young Adults Surviving Glioblastoma
A small site with some stories and contact information.
Review 7/08
Glioblastoma Multiforme
These two articles are written for medical professionals- references are included.
Review 7/08
Germinoma
Germinoma
This article is written at a high medical level.
Review 7/08
Optic Glioma
Optic Nerve Gliomas
This article, with a radiology bent, is written at a high medical level.
Review 7/08
Optic Glioma
There are about 90 people on this site about this tumor. Archives are private.
Review 7/08
Choroid Plexus Tumors
Choroid Plexus Papillomas
These two articles are written at a high medical level about this benign tumor.
Review 7/08
Choroid Papilloma and Carcinoma
This is a very small group interested in this rare tumor
Review 7/08
Astrocytoma
Astrocytoma/Glioma
This is a short page on this type of tumor.
Review 7/08
Astrocytoma
This article is written at a high medical level on this tumor.
Review 7/08
Posterior Fossa Tumor
Posterior Fossa Tumor
Although not really a specific tumor, this highly medical article may help with understanding tumors located in this area.
Review 7/08
Fibrosarcoma
BoneTumors.org
A comprehensive source of bone tumor information
Review 7/08
Children's Hospital Boston
A good source of information for pediatric cancers
Review 7/08
Neuroblastoma
American Cancer Society
A comprehensive source for cancer reference information for both adults and children
Review 7/08
Children's Cancer Web
An independent non-profit site with comprehensive resource for Neuroblastoma and other pediatric tumors
Review 7/08
Mayo Clinic
A world class medical facility offers simple to understand information on all types of cancer.
Review 7/08
Hepatoblastoma
Lucile Packard Children's Hospital
Hepatoblastoma is a very rare cancerous tumor that originates in the liver
Review 7/08
University of Virginia Health System
Detailed information on hepatoblastoma, including causes, stages, symptoms, diagnosis, and treatment.
Review 7/08
eMedicine.com
Article by Jennifer R. Willert - Hepatoblastoma is the most common liver cancer in children, although it is relatively uncommon compared with other solid tumors.
Review 7/08
eMedicine.com
Article by Mary Elizabeth McCarville. Hepatoblastoma is the most common malignant liver tumor in early childhood. Most patients present younger than age 3.
Review 7/08
Diagnosing and treating pediatric hepatoblastoma: Oncology...
Diagnosing and treatment in children
Review 7/08
Clinical Trials
Recruiting, Intensive Neoadjuvant Chemotherapy in Treating Young Patients Undergoing Surgical Resection for High-Risk Hepatoblastoma
Review 7/08
Children's Hospital Boston
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My Child Has Hepatoblastoma a very rare cancerous tumor that originates in the liver. The liver is one of the largest organs in the body.
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Hepatoblastoma
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Hepatoblastoma is a cancer of the liver that most commonly occurs in infants. Who gets it? Hepatoblastoma is one of the more common cancers in infants, ...
Childhood Liver Cancer Treatment - National Cancer Institute
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The staging system was devised for use in an international hepatoblastoma treatment program in which only children with PRETEXT stage 1 hepatoblastoma ...
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