Getting Started
By now you have looked at the size of this folder and are wondering how you are going to find the most helpful sites. Starting a search for information can be overwhelming especially at a time when many other needs must be met. This book is divided into sections with considerable overlap so one may find what they are looking for. This is not an exhaustive list but some of the ones other parents have found useful.
1. Pediatric Brain Tumors List Serves - There are several great bookmarks, files and many posts in the archives to aid in you search.
2. Childhood Brain and Spinal Cord Turmors: A Guide for Families, Friends and Caretakers by Shiminski-Maher, Ccullen and Sansalone. This book is not on the web but is a must. You can find links from
3. Caring Bridge - A free, incredibly easy way to set up a website to keep in communication with loved ones.
4. Pediatric Oncology Resource Center- ACOR site - Arguably the best site out there for cancer parents to find information, links, and a community. Any issue- check here first. It probably has been covered and the organization is easy to use.
5. The Never Ending Squirrel Tales - This is a site by parents for parents of cancer kids- a lot of stuff that may hit home.
6. Virtual Trials - This can be a hard site initially to negotiate but the information here is great. There are more services/ links on brain tumors here than any other site. Check out the guide for the newly diagnosed at
7. National Coalition for Cancer Survivorship - This organization considers survivors from the time of diagnosis through the balance of life. One can get the Cancer Survivors Toolbox free of charge from this site.
This may also be helpful in getting started: Ten Things to Know About Evaluating Medical Resources on the Web. A guide to help evaluate medical websites.
Review 6/28/06
