End of Life Issues
It's Time to Go
This is a section of the pediatric oncology resource center on ACOR. There is a lot of information from other parents including funeral arrangements, grief links, a bereaved parents wish list, thoughts and poems.
Review 6/06
Children's Hospice International
In 1977, an 8-year-old boy was denied hospice because he was a child. This organization was formed in 1983 to provide a network of support and care for children with life-threatening conditions and their families.
Review 6/06
National Hospice and Palliative Care Organizations
An organization to promote quality end of life care. Some pediatric information on site particularly at ChIPPS page.
Review 6/06
Growth House
Site with a lot of information on end of life issues, grief, and care.
Review 6/06
Cancer Pain Management in Children
A site from Texas Children Hospital regarding children's pain with cancer- a special section deals with the dying child.
Review 6/06
Preparing for Death
An article about the end of life which talks about the physical, emotional and spiritual changes common to this transition. Written by a Florida hospice organization.
Review 6/06
Grief/Bereavement
Compassionate Friends
The Compassionate Friends is a national nonprofit, self-help support organization which offers chapter meetings, articles, brochures, sibling information and links to families who are grieving the death of a child of any age, from any cause.
Review 6/06
Grief Warehouse
Site designed specifically for those who lost their child.
Review 6/06
My Parents Are Survivors
Site for moms, dads, grandparents, and sibs- tons of information, poetry and links. Interesting stuff on butterfly releases as a memorial.
Review 6/06
Bereaved Parents of the USA
Bereaved Parents of the USA (BP/USA) is a nationwide organization designed to aid and support bereaved parents and their families who are struggling to survive their grief after the death of a child. There are local chapters meetings and an online newsletter.
Review 6/06
The Centering Corporation
A list of books with short reviews on death and grief.
Review 6/06
Children's Lighthouse Memorial
An interesting idea- for $250 you can have your child's name engraved on a stone which will be placed at the lighthouse.
Review 6/06
Memorial Sites
Cancer Kids
An organization designed to help tell children's stories by posting personal websites. This a way for parents who have developed a memorial website to have their site found by others.
Review 6/06
Heavenly Lights Children Memorial
Memorial sites for children who died from childhood diseases and raise awareness.
Review 6/06
A Place to Honor Grief
A place to write a your story about your child (open to all people who have had a loved one die).
Review 6/06