Childhood Cancer Sites
Madisons Foundation
Madisons Foundation is dedicated to improving the quality and quantity of information available to parents of children with rare, life-threatening diseases, and to facilitating effective communication amongst parents, physicians and medical experts. Information about Rare Pediatric Diseases - Compiled by Experts with help from the David Geffen School of Medicine at UCLA, UCLA Mattel Children's Hospital, and City of Hope, Madisons Foundation is assembling a database of rare pediatric diseases. Database entries include symptoms, treatments, and additional sources where you can find out more information. Need help with confusing terminology? This site has a Glossary of Unfamiliar Terminology.
MADISONS Foundation
P.O. Box 241956
Los Angeles, CA 90024
Tel: (310) 264 0826
E-mail: getinfo@madisonsfoundation.org
Review 6/06
Patty Feist's Pediatric Oncology Resource Center,
Arguably, the best general childhood cancer parent support site on the web. Virtually every aspect of childhood cancer is taken into account including disease, treatment, family issues, survivors, a time to go, activism, and other resources/links.
Reviewed 6/06
The Never Ending Squirrel Tales
This is a private, religiously oriented site that is exclusively by cancer kid parents for cancer kid parents. The site is full of practical tips, inspiring stories, and resources. It is possible to connect to other parent through either the guest book or the bulletin board. Some of the best pages are- Decorating your Hospital Room (http://www.squirreltales.com/articles/decorate.html); Out of the Mouth of Babes (http://www.squirreltales.com/articles/babes.html); and You know you are a parent of a cancer kid when. (http://www.squirreltales.com/articles/fun.html). One of the best sites out there.
Reviewed 6/06
Candlelighter's Childhood Cancer Foundation
In 1970, concerned parents formed this group that now has more than 43,000 members to address the concerns of childhood cancer. This site is not the easiest to negotiate but is very worthwhile as a resource if you stick to it. The links are excellent, the newsletters are in-depth (available on line), the recommend reading and links are top-notch and the message board in unparalleled in the childhood cancer community. Also one can look to see if there is a local support group.
Review 6/06
CureSearch
(formerly know as National Childhood Cancer Foundation) CureSearch unites the Children's Oncology Group (COG) and the National Childhood Cancer Foundation (NCCF) through a shared mission to cure and prevent childhood and adolescent cancer through scientific discovery and compassionate care. At more than 200 COG member institutions worldwide, our dedicated physicians, nurses and scientists are conducting clinical trials and performing research to identify cancer causes and pioneer treatments and cures. CureSearch NCCF supports this lifesaving research by raising public awareness and funds through awareness, legislative and fundraising programs, which directly contribute to increasing
Review 6/06
Foundation for the Children's Oncology Groups
(formerly know as National Childhood Cancer Foundation)
This organization provides education, advocacy for issues and fundraising. This is one of the organizations highly involved in Gold Ribbons Days for Childhood Cancer Awareness during Septembers (Childhood Cancer Awareness Month). Particularly interesting pages are: Facts About Childhood Cancer- (http://www.nccf.org/childhoodcancer/facts.asp) Childhood Cancer is Different- (http://www.nccf.org/childhoodcancer/different.asp)
Review 6/06
America's Baby Cancer Foundation
A small site for infant and toddler cancer.
Review 6/06
Children's Cancer Web
A site dedicated to providing a list of childhood cancer resources- worldwide.
Review 6/06
Hope Street Kids
This foundation was started by US Representative Deborah Pryce and her husband after their child died of neuroblastoma. This is an excellent site. The parents guide has a list of questions and practical tips parents could consider when their child is diagnosed, about procedure, getting the right treatment, meeting your family's needs, finding support and clinical trials. Good information about childhood cancer (facts and figures) and good resources.
Review 6/06
Cancer Care
Cancer Care is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance. Phone conferences are frequently listed.
Review 6/06
Children's Cause
This is the site of a consumer-based, independent advocacy voice focusing on national policies related to services for pediatric cancer survivors, research, and health care.
Review 6/06
National Children's Cancer Society
A national organization based in St. Louis that helps with financial and emotional support, children and their families can more effectively deal with the difficulties of cancer treatment. There are several services and tons of links.
Review 6/06
Cancer Kids
This organization began in 1997 helps kids tell their stories (mainly memorial) by listing the personal websites. It is a relatively small site with a Message Board.
Review6/06
Chai LifeLine
A Jewish organization that offers a variety of program including a kosher camp, other trips and wish fulfillment programs and telephone support.
Review 6/06
Shared Experiences
A place to search for others experiences and add your own.
Review 6/06
Kids Health
The Nemours Foundation maintains this website and has won multiple awards as one of the world's best health websites for children. It has information on cancer and is extremely easy to read - fact filled yet understandable. Website has info on lots of topics, not just pediatric cancer.
Review 6/06
